Wednesday, November 11, 2009

Wednesday,

Once again the time has slipped by us and it has been over a week since the last update. We appreciate your checking back to see the latest with Bonnie’s health. So, here is the latest:

First off is an update on Bonnie’s feet. If you recall, she has not been able to walk since we moved to Sterling Heights on October 31st due to the chemo burns. Our insurance company covered the cost to rent a wheel chair which came in handy to get Bonnie out and about. Our apartment is 3 miles from the Oakland Mall, 6 miles from the Somerset Mall and 10 miles from Lakeside Mall, so Bonnie has been wheeled around in the highest concentration of retail in Michigan. Wearing a protective mask and gloves did bring about a few stares here and there, but it was still worth it for Bonnie. In the last three days Bonnie’s feet have dramatically improved. On Monday she was able to walk into Karmanos’ clinic without too much discomfort to where today there was minimal to no pain. Thank you for your specific prayers on this issue.

Bonnie continues to experience nausea and it can come on without notice. Everything tastes like salt water from the ocean, which contributes to the nausea. Fortunately there is a medication that is fairly responsive in masking the nausea making it somewhat easier to cope with.

A specific prayer request now involves a rash that seems to be spreading on Bonnie’s face and neck. Please pray for the doctors’ wisdom in diagnosing and treating it. There are differing opinions on whether it is from an allergic reaction to one of the meds she is taking or if it is Graft vs Host Disease. The challenge is if she is allergic to one of the meds, it will be extremely difficult in determining which one due to number of meds she is taking. They have checked the stem cell donor’s record and have determined he does not have any allergies to medicines. In the interim, they have started Bonnie on a steroid to see if they can control and slow the rash down. Thus far there hasn’t been any improvement; in fact we think it looks worse.

In the midst of the ongoing drama, we’ve had some nice distractions mixed in. Callie came down with Grandma this past Thursday and stayed until yesterday (Tuesday) and went home with Grandpa and Grandma. On Saturday, Cassandra drove down and stayed through Sunday afternoon. It was nice having the girls here this weekend.

Today we had a wonderful lunch and visit with two of Bonnie’s fellow transplant patients along with their spouses that we got to know during the hospital stay. It was encouraging and therapeutic for Bonnie to hear how they are progressing since their transplant which both were two days prior to Bonnie’s. When you travel the road we have been on, it is easy to bond with others traveling the same road. We are thankful to God for these new friendships and we are also thankful for your longstanding friendships as well.

Steve & Bonnie

4 comments:

  1. Well thank God for your good report! We have been waiting and checking for word from you and worried that something might have gone wrong. So sorry that the feet thing lasted so long. THAT was a trial! Now we will pray about this rash. If it's not one thing, its another! You are developing patience and trust and probably many other things. Thank you for honoring God with your faithful lives. Bless you. Isa 38:17.

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  2. Thanks for the update. One of us still runs to check every morning to hear news of how Bonnie is doing and how you all are caring for each other. Such an encouragement. We will keep praying and watching and learning from you all! Charles, Tami, Emma and Hannah

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  3. Steve and Bonnie,
    We're serious about lunch again on Wednesday this coming week if it works for you. Let us know.
    Gil and Karen

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  4. Steve and Bonnie,
    I have just learned of your situation tonight and have read a few recent blog posts. Bless your hearts! I am so glad to hear of the good progress for both of you. I don't know if you need help, or want visits from anyone, but I live quite close to you. I would be happy to help with anything you need. My phone is 248-417-2227 (cell) or email is dkfueslein@comcast.net. Please let me know if there is anyway I can assist, even if it just to distract you for a time! My prayers are with you, Diane Fueslein

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